Support the PURA Syndrome Foundation
Start a fundraiser for World Rare Disease Day
We are no longer accepting donations on this campaign, but there are other ways for you to support us today!
Rachel Elmalech
"Happy birthday! May you continue to be healthy, happy and an inspiration to us all! "
$118
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Stefanie Mitchell
I donated in support of this campaign on Taylor Shanks's page.
A supporter of Taylor Shanks
"We LOVE Taylor Shanks. Greg & Cindy McKenzie"
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Jim Ewing
"We are so proud of you Taylor for what you have accomplished so far and what you will accomplish in the future. "
$100
A supporter of Taylor Shanks
"💕 We love you Taylor 💕"
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Richard Worf
"We are so proud of Taylor!"
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Caroline White
"Best wishes and we love you!"
$25
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Lindsey DeBorde
"Sweet Taylor, you rock! "
$50
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Ann Sanders
"Ann and Blaine Sanders"
$200
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Abbey He
I donated in support of this campaign on Taylor Shanks's page.
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david hall
"Go Taylor!"
$100
Jennifer Vick
"For Taylor Shanks and her amazing parents. "
$250
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Elizabeth Davis
"Go Taylor!"
$100
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Debby Sacra
"with hope and best wishes."
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Susan Thomas
"Way to go Taylor. So proud of all your achievements. Susan and Mahlon Thomas"
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Carol Bowen
"So proud of you guys! Carol and Jim"
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Lynn Wilkerson
"We love Taylor! "
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Paula & Steve Rozov
"Here’s to our earth angels who teach us all about love"
$10
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david hall
"We hope that research uncovers treatment options for Taylor and others with similar issues"
$150
Shea Chambers
"Love you, Taylor!"
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Lyn Sweet
"Go Team Taylor!"
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Linda Haigh
"You are such a precious young lady!"
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Ann Patterson
"We are donating in honor of Taylor."
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Anne Doherty
I donated in support of this campaign on Taylor Shanks's page.
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Elaine Agassi
"Eliana's name saya it all. You are a shaliach to the world of research and hope. May Hashem continue to answer your prayers."
$50
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Barbara Weiss
"Happy Birthday Eliana! Love, Aunt Barbara & Uncle Michael "
$180
11%
Towards Our Goal
2
Fundraisers
40
Donations
0
Recurring Donors
Join the PURA Syndrome Foundation as we raise awareness and celebrate World Rare Disease Day! We hope you will rally your friends, family, and networks to support our work. By becoming a fundraiser for the PURA SYNDROME FOUNDATION, you will support continued research into this rare genetic condition.
Starting a fundraiser is easy to do, and it's fun. We'll even give you all the tools you'll need to make a difference. With your help we can ensure additional research of PURA Syndrome and help provide support for families affected by PURA Syndrome. As you build your fundraiser for World Rare Disease Day, please consider doing the following:
1. Focus on writing YOUR story which will educate people about what PURA Syndrome IS and how you and your family are impacted. Include a photo or video if you are comfortable - there is a place to add a photo in the fundraising platform, or you can add the link to social media posts with uploaded photos and videos of your choice.
2. Set a goal for your fundraiser.
3. Share your fundraising link with friends and family via email, text, and social media. Update your friends and family over the course of the fundraiser as you get closer to your goal.
If you have any questions, please do not hesitate to reach out to a.shanks@pura-syndrome.org.
Help Us Find
Recurring Donors
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Giving $50 Per MonthYou can help us get more recurring donations by starting a fundraiser!
2 people have already started fundraising for this campaign!
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25
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You will get these tools to help you run a successful campaign:
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Automated Notifications & Emails
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