Support our PURA Perfect Foundation

Help Support the PURA Syndrome!

Hi all,

PURA Syndrome is a rare genetic disorder that affects neurodevelopment. It was first described in medical literature in October of 2014 and to date, just over 600 individuals are diagnosed worldwide!

Please help me support the PURA Syndrome Foundation by checking out my fundraising page and please consider making a donation to help me reach my goal of [Your Fundraiser's Goal Will Automatically Go Here].

Just a small donation will go a long way to helping me meet my goal for the PURA SYNDROME FOUNDATION

Give today.

Giving online is easy and fast, and your support will make a real difference. I appreciate your help!

[Your Fundraiser's Name Will Automatically Go Here!]

I just started a fundraiser for PURA Syndrome! Help me reach my goal to : #purasyndrome

Thanks for being generous!

Hi [Donor Name],

Thank you so much for your generous donation to my fundraising campaign for PURA SYNDROME FOUNDATION. Because of you, we'll be able to fulfill our mission to support and drive research, raise awareness in the general community, as well as connect, educate, serve, and empower families impacted by PURA Syndrome. You're not only helping me to reach my fundraising goal, but you're making a real difference for all individuals with PURA Syndrome .

This is such a worthy cause and I'm proud that we're on the same team.

I'll keep you posted on our progress. In the meantime, I recommend that you check out the PURA SYNDROME FOUNDATION. They're doing great work.

Thanks again for your donation!

[Your Fundraiser's Name Will Automatically Go Here]

You're amazing--making a difference. Thanks to all who donated to my fundraiser so far!