Please help us reach our goal!
As 2018 draws to a close, we want to say HAPPY HOLIDAYS and THANK YOU for your support of the PURA Syndrome Foundation this year!
Did you know…
*PURA syndrome turned 4 years old this year!
*More than 275 people with PURA syndrome have been identified globally – almost 100 people were diagnosed over the last year!
*We have families in 32 different countries, speaking many different languages.
*We held our 3rd annual global conference this year in the United Kingdom, bringing together many of our families and members of our global research network.
*We made additional investments in medical research and took further steps toward establishing our global patient registry and our global bio bank.
*We created new educational materials and translated materials into languages most commonly spoken by our families around the world.
As we celebrate the holidays all over the globe, we ask you to help us with our international holiday campaign: The 10 from 10 Campaign. Our goal is to raise at least $10,000 (USD) in total from donors in at least 10 countries. If we meet our goal, an anonymous donor will award $10,000 as a matching gift!
Thank you for your generosity! The kindness of our donors allows us to continue to serve our families all over the world! Happy holidays!