Celebrate 5 years of PURA Syndrome

Join me in supporting real change as we celebrate 5 years of the amazing PURA Syndrome Foundation and their work!

The PURA Syndrome Foundation was formed a short 5 years ago by a group of amazing parents bonded by children who all shared the newly discovered PURA Syndrome diagnosis. Five years later look at us go- GLOBAL RESEARCH NETWORK and beyond! All proceeds go directly to the support of PURA Syndrome- and to Ryker!

Let’s support good in the world and make a difference. Help us support the PURA SYNDROME FOUNDATION for Ryker and our family. An anonymous friend to PURA Syndrome has pledged to donate $5,000 matching 5 fundraisers who can raise $500 each Let’s be one of the 5, for Ryker!

Just a small donation will go a long way to helping me meet my goal for the PURA SYNDROME FOUNDATION