Celebrate 5 years of PURA Syndrome

Join me in supporting real change. Let’s support good in the world and make a difference. Help us support the PURA SYNDROME FOUNDATION

Just a small donation will go a long way to helping me meet my goal for the PURA SYNDROME FOUNDATION

Makenna was just diagnosed last week after 6 long years of tests and confusion we found Dr Morgan from Vanderbilt pediatrics genetic and he found the problem. Makenna can't walk or talk but she's working hard to do it. She has seizures too. I'm wanting to raise money to help find out more about this disease and hopefully one day be able to help these kids out and treat it.