Tracey Ihrie's Fundraiser
We can make a difference in the lives of children with Pura Syndrome
Join me and help make a difference for all children including my 5 year old niece Amina who has Pura Syndrome and scoliosis.
We are no longer accepting donations on this campaign, but there are other ways for you to support us today!
Barbara Danklefsen
"My granddaughter has Pura"
$50
Amie Bassiouny
"Hope for all the PURA angels"
$50
Jennifer Pankop Kuchar
I donated in support of this campaign.
$25
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Holly Danklefsen
I donated in support of this campaign.
$25
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Tyler Boscoe
I donated in support of this campaign.
$25
Join me in raising awareness for the PURA Syndrome on February 29th, 2020, for World Rare Disease Day. Let's support good in the world and make a difference. All donation will help fund much-needed research and provide continued support for families affected by this rare genetic condition. My five year old niece Amina is one of these hundreds of children who need this support
Just a small donation will go a long way to helping me meet my goal for the PURA SYNDROME FOUNDATION