Sean Novak's Fundraiser
We can
Join me and help make a difference, please give today.
We are no longer accepting donations on this campaign, but there are other ways for you to support us today!
Rhoda Johansson Carlsson
"Congrats from Henry, 5 yrs old, and lives in Sweden. Diagnosed with Pura syndrome just a month ago ❤️"
Tera Vickers- Fry
"Happy Birthday Gretchen!!! From the Fry family"
$25
A supporter of Sean Novak
"Go Gretchen!"
Join me in raising awareness for the PURA Syndrome. Let's support good in the world and make a difference. All donation will help fund much-needed research and provide continued support for families affected by this rare genetic condition.
Just a small donation will go a long way to helping me meet my goal for the PURA SYNDROME FOUNDATION